Keywords
Grief
Caregivers
Parents
Neoplasms
Child
Death
Caregivers
Parents
Neoplasms
Child
Death
How to Cite
Carreño-Moreno, S., Chaparro-Díaz, L., Carrillo, G. M., & Gómez-Ramírez, O. J. (2019). Grief in the caregiver of the child dead by cancer: scoping review. Duazary, 16(2), 281–294. https://doi.org/10.21676/2389783X.2755
Abstract
The objective or aim for this review was to synthesize the methodological approach that has been studied and integrate the findings of the grief process in caregivers of children who died of cancer. A scoping review was conducted of 19 studies published in journals indexed between 2010 and 2017. The findings were treated with open inductive coding techniques. The results showed a mostly qualitative approach, involving mother and mother, with one year between the death of the child and entry into the study. The results of the studies revealed that because grief is lived as a response to the physical rupture of the bond with the child, it is through work on ties that grief can be overcome. The key links are those with the deceased child, with the living children, with the spouse, with the family and the health team. Therefore, continuous and compassionate accompaniment of the caregiver is required from the moment of the diagnosis of the child with cancer, which allows the construction of assertive links. After the death of the child, it is necessary to maintain the continuity of care and encourage the caregiver to participate in support groups.References
1. Siegel R, Miller K, Jemal A. Cancer statistics, 2018. CA Cancer J Clin [Revista en la internet]. 2018 [citado 2018 Feb 5]; 68(1):7–30. Doi: http://doi.wiley.com/10.3322/caac.21442.
2. International Agence for Research on Cancer. International incidence of childhood cancer [Internet]. [citado 2018 Jun 1]. Disponible en: http://iicc.iarc.fr/about/iicc3_series.php
3. International Agence for Research on Cancer. GLOBOCAN 2012 [Internet]. [citado 2018 Jun 18]. Disponible en: http://globocan.iarc.fr/Pages/fact_sheets_cancer.aspx
4. Patel S, Fernandez N, Wong A, Mullins W, Turk A, Dekel N, et al. Changes in self-reported distress in end-of-life pediatric cancer patients and their parents using the pediatric distress thermometer. Psychooncology [Revista en la internet]. 2014 [Citado 2018 Jun 1]; 23(5): 592–596. Doi: http://doi.wiley.com/10.1002/pon.3469.
5. Nam G, Warner E, Morreall D, Kirchhoff A, Kinney A, Fluchel M. Understanding psychological distress among pediatric cancer caregivers. Support Care Cancer [Revista en la internet]. 2016 [citado 2018 Jul 16]; 24(7): 3147–3155. Doi: http://doi.org/10.1007/s00520-016-3136-z
6. Lau S, Lu X, Balsamo L, Devidas M, Winick N, Hunger S, et al. Family life events in the first year of acute lymphoblastic leukemia therapy: a children’s oncology group report. Pediatr Blood Cancer. 2014;61(12):2277–2284. Doi: http://dor.org/10.1002/pbc.25195.
7. Dokken D. Making Meaning after the Death Of a Child: Bereaved Parents Share Their Experiences. Pediatr Nurs. 2013; 39(3): 147–50.
8. Rosenberg A, Dussel V, Kang T, Geyer J, Gerhardt C, Feudtner C, et al. Psychological Distress in Parents of Children With Advanced Cancer. JAMA Pediatr [Revista en la internet]. 2013 [citado 2018 Jun 1]; 167(6): 537. Doi: http//doi.org/10.1001/jamapediatrics.2013.628
9. Yoshida S, Amano K, Ohta H, Kusuki S, Morita T, Ogata A, et al. A comprehensive study of the distressing experiences and support needs of parents of children with intractable cancer. Jpn J Clin Oncol [Revista en la internet]. 2014 [citado 2018 Jun 1]; 44(12):1181–1188.Doi: http://doi.org/10.1093/jjco/hyu140.
10. Friedrichsdorf S, Postier A, Dreyfus J, Osenga K, Sencer S, Wolfe J. Improved Quality of Life at End of Life Related to Home-Based Palliative Care in Children with Cancer. J Palliat Med [Revista en la internet]. 2015 [citado 2018 Jun 1]; 18(2): 143–150. Doi: http://doi.org/10.1089/jpm.2014.0285.
11. Lützau P, Hechler M, Metzing S, Wolfe J. Children Dying from Cancer: Parents’ perspectives on symptoms, quality of life, characteristics of death, and end-of-life decisions. J Palliat Care. 2012; 28(4):274–281.
12. Robert R, Zhukovsky D, Mauricio R, Gilmore K, Morrison S, Palos G. Bereaved Parents’ Perspectives on Pediatric Palliative Care. J Soc Work End Life Palliat Care [Revista en la internet]. 2012 [citado 2018 Feb 5]; 8(4): 316–338. Doi: http://doi.org/10.1080/15524256.2012.732023.
13. Rogers C, Floyd F, Seltzer M, Greenberg J, Hong J. Long-term effects of the death of a child on parents’ adjustment in midlife. J Fam Psychol [Revista en la internet]. 2008 [citado 2018 Feb 5]; 22(2): 203–211. Doi: http://doi.org/10.1080/15524256.2012.732023.
14. Cacante C, Arias Valencia M. Asking for support: the case of families with children suffering cancer. Investig y Educ en Enfermería. 2009 jul; 27(2):170–180. Disponible en: http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-53072009000200002
15. Zetumer S, Young I, Shear M, Skritskaya N, Lebowitz B, Simon N, et al. The impact of losing a child on the clinical presentation of complicated grief. J Affect Disord [Revista en la internet]. 2015 [citado 2018 Feb 5]; (170):15–21. Doi: http://doi.org/10.1016/j.jad.2014.08.021.
16. Buckley C. When Sorrow Never Stops. Chronic Sorrow After the Death of a Child. J Christ Nurs [Revista en la internet]. 2016 [citado 2018 Feb 5]; 33(1):22–25. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/26817366
17. Sandler I, Tein J, Cham H, Wolchik S, Ayers T. Long-term effects of the Family Bereavement Program on spousally bereaved parents: Grief, mental health problems, alcohol problems, and coping efficacy. Dev Psychopathol [Revista en la internet]. 2016 [citado 2018 Feb 5]; 28(3): 801–818. Doi: http://dpi.org/10.1017/S0954579416000328
18. Price J, Jones A. Living Through the Life-Altering Loss of a Child: A Narrative Review. Issues Compr Pediatr Nurs [Revista en la internet]. 2015 [citado 2018 Feb 5]; 38(3):222–240. Doi: http://dpi.org/10.3109/01460862.2015.1045102.
19. Joronen K, Kaunonen M, Aho A. Parental relationship satisfaction after the death of a child. Scand J Caring Sci [Revista en la internet]. 2016 [citado 2018 Feb 5]; 30(3):499–506. Doi: http://doi.org/10.1111/scs.12270.
20. DeCinque N, Monterosso L, Dadd G, Sidhu R, Macpherson R, Aoun S. Bereavement support for families following the death of a child from cancer: experience of bereaved parents. J Psychosoc Oncol. 2006; 24(2):65–83. Doi: http://doi.org/10.1300/J077v24n02_05
21. Lichtenthal W, Corner G, Sweeney C, Wiener L, Roberts K, Baser R, et al. Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come? J Clin Oncol [Revista en la internet]. 2015 [citado 2018 Jun 2]; 33(20):2246–2253. Doi: http://dpi.org/10.1200/JCO.2014.59.0406
22. Williams A, McCorkle R. Cancer family caregivers during the palliative, hospice, and bereavement phases: a review of the descriptive psychosocial literature. Palliat Support Care [Revista en la internet]. 2011[citado 2018 Jun 20]; 9(3):315–325. Doi: http://doi.org/10.1017/S1478951511000265
23. Rosenberg A, Baker K, Syrjala K, Wolfe J. Systematic review of psychosocial morbidities among bereaved parents of children with cancer. Pediatr Blood Cancer [Revista en la internet]. 2012 [citado 2018 Jun 2]; 58(4):503–512. Doi: http://doi.org/10.1002/pbc.23386
24. Grassi L. Bereavement in families with relatives dying of cancer. Curr Opin Support Palliat Care [Revista en la internet]. 2007 [citado 2018 Jun 20];1(1):43–49. Doi: http://doi.org/10.1097/SPC.0b013e32813a3276
25. Manchado R, Tamames S, López M, Mohedano L, D´Agostino M, Veiga de Cabo J. Revisiones Sistemáticas Exploratorias- Scoping review. Med Segur Trab (Madr) [Revista en la internet]. 2009 [citado 2018 Feb 5]; 55(216):12–19. Disponible en: http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S0465-546X2009000300002
26. Sanz J, Veiga de Cabo J, Rojo C, D´Agostino M, Wanden C, Espulgues Pellicer J, et al. Los filtros metodológicos: aplicación a la búsqueda bibliográfica en la medicina del trabajo española. Med Segur Trab. 54(211):75–83. Disponible en: http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S0465-546X2008000200009
27. Burns N, Grove S. Investigación en enfermería. Quinta edición. España: editorial Elsevier Ltd; 2012.
28. Cáceres P. Análisis cualitativo de contenido: una alternativa metodológica alcanzable. Psicoperspectivas [Revista en la internet]. 2003 [citado 2017 Dec 27]; 2:53–82. Disponible en: http://www.psicoperspectivas.cl/index.php/psicoperspectivas/article/viewFile/3/3
29. Congreso de Colombia. LEY 44 DE 1993 [Internet]. Congreso de Colombia. 1993 [citado 2015 Jul 14]. Disponible en: http://cdr.com.co/phocadownload/ley 44 de 1993.pdf
30. O’Connor K, Barrera M. Changes in parental self-identity following the death of a child to cancer. Death Stud [Revista en la internet]. 2014; 38(6):404–411. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/24666147. doi.org/10.1080/07481187.2013.801376
31. Thompson A, Miller K, Barrera M, Davies B, Foster T, Gilmer M, et al. A Qualitative Study of Advice From Bereaved Parents and Siblings. J Soc Work End Life Palliat Care [Revista en la internet]. 2011; 7(2–3):153–172. Doi: http://doi.org/10.1080/15524256.2011.593153
32. Alam R, Barrera M, D’Agostino N, Nicholas D, Schneiderman G. Bereavement Experiences of Mothers and Fathers Over Time After the Death of a Child Due to Cancer. Death Stud. 2012;36(1):1–22.
33. Van der Geest I, Van Den Heuvel M, Van Vliet L, Pluijm S, Streng I, Michiels E, et al. Talking about Death with Children with Incurable Cancer: Perspectives from Parents. J Pediatr [Revista en la internet]. 2014;167(6):1320–1326. Doi: http://doi.org/10.1016/j.jpeds.2015.08.066
34. Price J, Jordan J, Prior L, Parkes J. Living through the death of a child: A qualitative study of bereaved parents’ experiences. Int J Nurs Stud [Revista en la internet]. 2011; 48(11):1384–1392. Doi: http://dx.doi.org/10.1016/j.ijnurstu.2011.05.006.
35. Grinyer A. A bereavement group for parents whose son or daughter died from cancer : how shared experience can lessen isolation. Mortal Promot Interdiscip study death dying. 2012;17(4):338–354. Doi:http://doi.org/10.1080/13576275.2012.730684
36. Nove-Josserand H, Godet A. La mort d’un enfant: un réel absolu, irréversible et sans appel ?: expériences groupales d’écoute et de suivi de parents ayant perdu un enfant d’un cance. Psycho-Oncologie. 2015;9(3):190–196. Doi: http://doi.org/10.1007/s11839-015-0531-5
37. Vega P, Rivera S, González R. El transitar del sobrevivir al revivir: Comprender la vivencia de padres y madres que han perdido a sus hijos a causa del cáncer. Rev Chil Pediatr. 2012;83(3):247–257. Doi:http://doi.org/10.4067/S0370-41062012000300006
38. Darbyshire P, Cleghorn A, Downes M, Elford J, Gannoni A, Mccullagh C, et al. Supporting bereaved parents: A phenomenological study of a telephone intervention programme in a paediatric oncology unit. J Clin Nurs. 2013;22(3–4):540–549. Doi: http://doi.org/10.1111/j.1365-2702.2012.04266.x.
39. Vega P, Rivera M, Gonzalez R. When grief turns into love: understanding the experience of parents who have revived after losing a child due to cancer. J Pediatr Oncol Nurs [Revista en la internet]. 2014; 31(3):166–176. Doi: http://doi.org/10.1177/1043454213515547
40. Snaman J, Kaye E, Torres C, Gibson D, Baker J. Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey. Pediatr Blood Cancer [Revista en la internet]. 2016 [citado 2018 Feb 5]; 63(9):1594–1602. Doi: http://doi.org/10.1002/pbc.26046.
41. Mullen J, Reynolds M, Larson J. Caring for pediatric patients’ families at the child’s end of life. Crit Care Nurse. 2015; 35(6):46–56. doi: 10.4037/ccn201561442. Rosenberg A, Starks H, Jones B. “I know it when I see it.” The complexities of measuring resilience among parents of children with cancer. Support Care Cancer. 2014;2661–2668. Doi: http://doi.org/10.1007/s00520-014-2249-5
42. Gerrish N, Neimeyer R, Bailey S. Exploring maternal grief: A mixed-methods investigation of mothers’ responses to the death of a child from cancer. J Constr Psychol [Revista en la internet]. 2014;27(3):151–173. Doi: http://doi.org/10.1080/10720537.2014.904700
43. Welch J, Mannix M, Boergers J, Jelalian E, Barbosa F, Fujii-Rios H, et al. Parental interest in a bereavement support visit when a child dies from cancer. Omega (United States) [Revista en la internet]. 2012;65(4): 335–346. DOi: http://doi.org/10.2190/OM.65.4.f
44. Foster T, Gilmer M, Davies B, Dietrich M, Barrera M, Fairclough L, et al. Comparison of Continuing Bonds Reported by Parents and Siblings After a Child’s Death from Cancer. Death Stud. 2011;35:420–440. Doi: http://doi.org/10.1080/07481187.2011.553308
45. Gilmer M, Foster T, Vannatta K, Barrera M, Davies B, Dietrich M, et al. Changes in parents after the death of a child from cancer. J Pain Symptom Manage [Revista en la internet]. 2012; 44(4):572–582. Doi: http://doi.org/10.1016/j.jpainsymman.2011.10.017
46. Van Der Geest I, Darlington A-SE, Streng I, Michiels E, Pieters R, Van Den Heuvel-Eibrink M. Parents’ experiences of pediatric palliative care and the impact on long-term parental grief. J Pain Symptom Manage [Revista en la internet]. 2014; 47(6):1043–1053. Doi: http://doi.org/10.1016/j.jpainsymman.2013.07.007
47. Peles Bortz A, Malkinson R, Krulik T. Bereaved Jewish Mothers of Children Who Died of Cancer. Cancer Nurs [Revista en la internet]. 2013;36(5):E1–8. Doi: http://doi.org/10.1097/NCC.0b013e31827eecab.
48. McCarthy M, Clarke N, Ting CL, Conroy R, Anderson V, Heath J. Prevalence and predictors of parental grief and depression after the death of a child from cancer. J Palliat Med [Revista en la internet]. 2010;13(11):1321–1326. Doi: http://doi.org/10.1089/jpm.2010.0037
49. Albuquerque S, Narciso I, Pereira M. Dyadic coping mediates the relationship between parents’ grief and dyadic adjustment following the loss of a child. Anxiety, Stress Coping [Revista en la internet]. 2018 [citado 2018 Feb 5];31(1):93–106. Doi: http://doi.org/10.1080/10615806.2017.1363390
50. Infurna F, Luthar S. Parents’ adjustment following the death of their child: Resilience is multidimensional and differs across outcomes examined. J Res Pers [Revista en la internet]. 2017 [citado 2018 Feb 5]; (68):38-53. Doi: https://doi.org/10.1016/j.jrp.2017.04.004
51. Infurna F, Luthar S. Parents’ adjustment following the death of their child: Resilience is multidimensional and differs across outcomes examined. J Res Pers [Revista en la internet]. 2017 [citado 2018 Feb 5]; (68):38–53. Doi: https://doi.org/10.1016/j.jrp.2017.04.004
2. International Agence for Research on Cancer. International incidence of childhood cancer [Internet]. [citado 2018 Jun 1]. Disponible en: http://iicc.iarc.fr/about/iicc3_series.php
3. International Agence for Research on Cancer. GLOBOCAN 2012 [Internet]. [citado 2018 Jun 18]. Disponible en: http://globocan.iarc.fr/Pages/fact_sheets_cancer.aspx
4. Patel S, Fernandez N, Wong A, Mullins W, Turk A, Dekel N, et al. Changes in self-reported distress in end-of-life pediatric cancer patients and their parents using the pediatric distress thermometer. Psychooncology [Revista en la internet]. 2014 [Citado 2018 Jun 1]; 23(5): 592–596. Doi: http://doi.wiley.com/10.1002/pon.3469.
5. Nam G, Warner E, Morreall D, Kirchhoff A, Kinney A, Fluchel M. Understanding psychological distress among pediatric cancer caregivers. Support Care Cancer [Revista en la internet]. 2016 [citado 2018 Jul 16]; 24(7): 3147–3155. Doi: http://doi.org/10.1007/s00520-016-3136-z
6. Lau S, Lu X, Balsamo L, Devidas M, Winick N, Hunger S, et al. Family life events in the first year of acute lymphoblastic leukemia therapy: a children’s oncology group report. Pediatr Blood Cancer. 2014;61(12):2277–2284. Doi: http://dor.org/10.1002/pbc.25195.
7. Dokken D. Making Meaning after the Death Of a Child: Bereaved Parents Share Their Experiences. Pediatr Nurs. 2013; 39(3): 147–50.
8. Rosenberg A, Dussel V, Kang T, Geyer J, Gerhardt C, Feudtner C, et al. Psychological Distress in Parents of Children With Advanced Cancer. JAMA Pediatr [Revista en la internet]. 2013 [citado 2018 Jun 1]; 167(6): 537. Doi: http//doi.org/10.1001/jamapediatrics.2013.628
9. Yoshida S, Amano K, Ohta H, Kusuki S, Morita T, Ogata A, et al. A comprehensive study of the distressing experiences and support needs of parents of children with intractable cancer. Jpn J Clin Oncol [Revista en la internet]. 2014 [citado 2018 Jun 1]; 44(12):1181–1188.Doi: http://doi.org/10.1093/jjco/hyu140.
10. Friedrichsdorf S, Postier A, Dreyfus J, Osenga K, Sencer S, Wolfe J. Improved Quality of Life at End of Life Related to Home-Based Palliative Care in Children with Cancer. J Palliat Med [Revista en la internet]. 2015 [citado 2018 Jun 1]; 18(2): 143–150. Doi: http://doi.org/10.1089/jpm.2014.0285.
11. Lützau P, Hechler M, Metzing S, Wolfe J. Children Dying from Cancer: Parents’ perspectives on symptoms, quality of life, characteristics of death, and end-of-life decisions. J Palliat Care. 2012; 28(4):274–281.
12. Robert R, Zhukovsky D, Mauricio R, Gilmore K, Morrison S, Palos G. Bereaved Parents’ Perspectives on Pediatric Palliative Care. J Soc Work End Life Palliat Care [Revista en la internet]. 2012 [citado 2018 Feb 5]; 8(4): 316–338. Doi: http://doi.org/10.1080/15524256.2012.732023.
13. Rogers C, Floyd F, Seltzer M, Greenberg J, Hong J. Long-term effects of the death of a child on parents’ adjustment in midlife. J Fam Psychol [Revista en la internet]. 2008 [citado 2018 Feb 5]; 22(2): 203–211. Doi: http://doi.org/10.1080/15524256.2012.732023.
14. Cacante C, Arias Valencia M. Asking for support: the case of families with children suffering cancer. Investig y Educ en Enfermería. 2009 jul; 27(2):170–180. Disponible en: http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-53072009000200002
15. Zetumer S, Young I, Shear M, Skritskaya N, Lebowitz B, Simon N, et al. The impact of losing a child on the clinical presentation of complicated grief. J Affect Disord [Revista en la internet]. 2015 [citado 2018 Feb 5]; (170):15–21. Doi: http://doi.org/10.1016/j.jad.2014.08.021.
16. Buckley C. When Sorrow Never Stops. Chronic Sorrow After the Death of a Child. J Christ Nurs [Revista en la internet]. 2016 [citado 2018 Feb 5]; 33(1):22–25. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/26817366
17. Sandler I, Tein J, Cham H, Wolchik S, Ayers T. Long-term effects of the Family Bereavement Program on spousally bereaved parents: Grief, mental health problems, alcohol problems, and coping efficacy. Dev Psychopathol [Revista en la internet]. 2016 [citado 2018 Feb 5]; 28(3): 801–818. Doi: http://dpi.org/10.1017/S0954579416000328
18. Price J, Jones A. Living Through the Life-Altering Loss of a Child: A Narrative Review. Issues Compr Pediatr Nurs [Revista en la internet]. 2015 [citado 2018 Feb 5]; 38(3):222–240. Doi: http://dpi.org/10.3109/01460862.2015.1045102.
19. Joronen K, Kaunonen M, Aho A. Parental relationship satisfaction after the death of a child. Scand J Caring Sci [Revista en la internet]. 2016 [citado 2018 Feb 5]; 30(3):499–506. Doi: http://doi.org/10.1111/scs.12270.
20. DeCinque N, Monterosso L, Dadd G, Sidhu R, Macpherson R, Aoun S. Bereavement support for families following the death of a child from cancer: experience of bereaved parents. J Psychosoc Oncol. 2006; 24(2):65–83. Doi: http://doi.org/10.1300/J077v24n02_05
21. Lichtenthal W, Corner G, Sweeney C, Wiener L, Roberts K, Baser R, et al. Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come? J Clin Oncol [Revista en la internet]. 2015 [citado 2018 Jun 2]; 33(20):2246–2253. Doi: http://dpi.org/10.1200/JCO.2014.59.0406
22. Williams A, McCorkle R. Cancer family caregivers during the palliative, hospice, and bereavement phases: a review of the descriptive psychosocial literature. Palliat Support Care [Revista en la internet]. 2011[citado 2018 Jun 20]; 9(3):315–325. Doi: http://doi.org/10.1017/S1478951511000265
23. Rosenberg A, Baker K, Syrjala K, Wolfe J. Systematic review of psychosocial morbidities among bereaved parents of children with cancer. Pediatr Blood Cancer [Revista en la internet]. 2012 [citado 2018 Jun 2]; 58(4):503–512. Doi: http://doi.org/10.1002/pbc.23386
24. Grassi L. Bereavement in families with relatives dying of cancer. Curr Opin Support Palliat Care [Revista en la internet]. 2007 [citado 2018 Jun 20];1(1):43–49. Doi: http://doi.org/10.1097/SPC.0b013e32813a3276
25. Manchado R, Tamames S, López M, Mohedano L, D´Agostino M, Veiga de Cabo J. Revisiones Sistemáticas Exploratorias- Scoping review. Med Segur Trab (Madr) [Revista en la internet]. 2009 [citado 2018 Feb 5]; 55(216):12–19. Disponible en: http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S0465-546X2009000300002
26. Sanz J, Veiga de Cabo J, Rojo C, D´Agostino M, Wanden C, Espulgues Pellicer J, et al. Los filtros metodológicos: aplicación a la búsqueda bibliográfica en la medicina del trabajo española. Med Segur Trab. 54(211):75–83. Disponible en: http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S0465-546X2008000200009
27. Burns N, Grove S. Investigación en enfermería. Quinta edición. España: editorial Elsevier Ltd; 2012.
28. Cáceres P. Análisis cualitativo de contenido: una alternativa metodológica alcanzable. Psicoperspectivas [Revista en la internet]. 2003 [citado 2017 Dec 27]; 2:53–82. Disponible en: http://www.psicoperspectivas.cl/index.php/psicoperspectivas/article/viewFile/3/3
29. Congreso de Colombia. LEY 44 DE 1993 [Internet]. Congreso de Colombia. 1993 [citado 2015 Jul 14]. Disponible en: http://cdr.com.co/phocadownload/ley 44 de 1993.pdf
30. O’Connor K, Barrera M. Changes in parental self-identity following the death of a child to cancer. Death Stud [Revista en la internet]. 2014; 38(6):404–411. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/24666147. doi.org/10.1080/07481187.2013.801376
31. Thompson A, Miller K, Barrera M, Davies B, Foster T, Gilmer M, et al. A Qualitative Study of Advice From Bereaved Parents and Siblings. J Soc Work End Life Palliat Care [Revista en la internet]. 2011; 7(2–3):153–172. Doi: http://doi.org/10.1080/15524256.2011.593153
32. Alam R, Barrera M, D’Agostino N, Nicholas D, Schneiderman G. Bereavement Experiences of Mothers and Fathers Over Time After the Death of a Child Due to Cancer. Death Stud. 2012;36(1):1–22.
33. Van der Geest I, Van Den Heuvel M, Van Vliet L, Pluijm S, Streng I, Michiels E, et al. Talking about Death with Children with Incurable Cancer: Perspectives from Parents. J Pediatr [Revista en la internet]. 2014;167(6):1320–1326. Doi: http://doi.org/10.1016/j.jpeds.2015.08.066
34. Price J, Jordan J, Prior L, Parkes J. Living through the death of a child: A qualitative study of bereaved parents’ experiences. Int J Nurs Stud [Revista en la internet]. 2011; 48(11):1384–1392. Doi: http://dx.doi.org/10.1016/j.ijnurstu.2011.05.006.
35. Grinyer A. A bereavement group for parents whose son or daughter died from cancer : how shared experience can lessen isolation. Mortal Promot Interdiscip study death dying. 2012;17(4):338–354. Doi:http://doi.org/10.1080/13576275.2012.730684
36. Nove-Josserand H, Godet A. La mort d’un enfant: un réel absolu, irréversible et sans appel ?: expériences groupales d’écoute et de suivi de parents ayant perdu un enfant d’un cance. Psycho-Oncologie. 2015;9(3):190–196. Doi: http://doi.org/10.1007/s11839-015-0531-5
37. Vega P, Rivera S, González R. El transitar del sobrevivir al revivir: Comprender la vivencia de padres y madres que han perdido a sus hijos a causa del cáncer. Rev Chil Pediatr. 2012;83(3):247–257. Doi:http://doi.org/10.4067/S0370-41062012000300006
38. Darbyshire P, Cleghorn A, Downes M, Elford J, Gannoni A, Mccullagh C, et al. Supporting bereaved parents: A phenomenological study of a telephone intervention programme in a paediatric oncology unit. J Clin Nurs. 2013;22(3–4):540–549. Doi: http://doi.org/10.1111/j.1365-2702.2012.04266.x.
39. Vega P, Rivera M, Gonzalez R. When grief turns into love: understanding the experience of parents who have revived after losing a child due to cancer. J Pediatr Oncol Nurs [Revista en la internet]. 2014; 31(3):166–176. Doi: http://doi.org/10.1177/1043454213515547
40. Snaman J, Kaye E, Torres C, Gibson D, Baker J. Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey. Pediatr Blood Cancer [Revista en la internet]. 2016 [citado 2018 Feb 5]; 63(9):1594–1602. Doi: http://doi.org/10.1002/pbc.26046.
41. Mullen J, Reynolds M, Larson J. Caring for pediatric patients’ families at the child’s end of life. Crit Care Nurse. 2015; 35(6):46–56. doi: 10.4037/ccn201561442. Rosenberg A, Starks H, Jones B. “I know it when I see it.” The complexities of measuring resilience among parents of children with cancer. Support Care Cancer. 2014;2661–2668. Doi: http://doi.org/10.1007/s00520-014-2249-5
42. Gerrish N, Neimeyer R, Bailey S. Exploring maternal grief: A mixed-methods investigation of mothers’ responses to the death of a child from cancer. J Constr Psychol [Revista en la internet]. 2014;27(3):151–173. Doi: http://doi.org/10.1080/10720537.2014.904700
43. Welch J, Mannix M, Boergers J, Jelalian E, Barbosa F, Fujii-Rios H, et al. Parental interest in a bereavement support visit when a child dies from cancer. Omega (United States) [Revista en la internet]. 2012;65(4): 335–346. DOi: http://doi.org/10.2190/OM.65.4.f
44. Foster T, Gilmer M, Davies B, Dietrich M, Barrera M, Fairclough L, et al. Comparison of Continuing Bonds Reported by Parents and Siblings After a Child’s Death from Cancer. Death Stud. 2011;35:420–440. Doi: http://doi.org/10.1080/07481187.2011.553308
45. Gilmer M, Foster T, Vannatta K, Barrera M, Davies B, Dietrich M, et al. Changes in parents after the death of a child from cancer. J Pain Symptom Manage [Revista en la internet]. 2012; 44(4):572–582. Doi: http://doi.org/10.1016/j.jpainsymman.2011.10.017
46. Van Der Geest I, Darlington A-SE, Streng I, Michiels E, Pieters R, Van Den Heuvel-Eibrink M. Parents’ experiences of pediatric palliative care and the impact on long-term parental grief. J Pain Symptom Manage [Revista en la internet]. 2014; 47(6):1043–1053. Doi: http://doi.org/10.1016/j.jpainsymman.2013.07.007
47. Peles Bortz A, Malkinson R, Krulik T. Bereaved Jewish Mothers of Children Who Died of Cancer. Cancer Nurs [Revista en la internet]. 2013;36(5):E1–8. Doi: http://doi.org/10.1097/NCC.0b013e31827eecab.
48. McCarthy M, Clarke N, Ting CL, Conroy R, Anderson V, Heath J. Prevalence and predictors of parental grief and depression after the death of a child from cancer. J Palliat Med [Revista en la internet]. 2010;13(11):1321–1326. Doi: http://doi.org/10.1089/jpm.2010.0037
49. Albuquerque S, Narciso I, Pereira M. Dyadic coping mediates the relationship between parents’ grief and dyadic adjustment following the loss of a child. Anxiety, Stress Coping [Revista en la internet]. 2018 [citado 2018 Feb 5];31(1):93–106. Doi: http://doi.org/10.1080/10615806.2017.1363390
50. Infurna F, Luthar S. Parents’ adjustment following the death of their child: Resilience is multidimensional and differs across outcomes examined. J Res Pers [Revista en la internet]. 2017 [citado 2018 Feb 5]; (68):38-53. Doi: https://doi.org/10.1016/j.jrp.2017.04.004
51. Infurna F, Luthar S. Parents’ adjustment following the death of their child: Resilience is multidimensional and differs across outcomes examined. J Res Pers [Revista en la internet]. 2017 [citado 2018 Feb 5]; (68):38–53. Doi: https://doi.org/10.1016/j.jrp.2017.04.004
Downloads
Download data is not yet available.