Abstract
This study to describe the bond of the dyad (Person with cancer - Family Caregiver) during hospitalization in Univesitary Hospital to Bogotá. It is qualitative study with a Grounded Theory approach based on 41 semi-structured interviews with 14 people with cancer, 13 family caregivers and 13 couples. The data derived from the three sources to interview were coded. Then they were grouped into subcategories for each source and in the end 7 patterns were identified that describe the way in which the bond occurs during hospitalization. It was identified that the dyads in these moments of crisis redefined their relationship, strengthen them as a team and allow them to recognize the need for social and institutional support. This study contributes to nursing practice by determining the significant aspects of the dyad during hospitalization, such as reducing system barriers, improving communication, promoting coexistence in a different way, facilitating institutional support and allowing to project oneself as a dyad and as people for new moments of the trajectory.References
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17. Bidwell JT, Lyons KS, Lee CS. Caregiver wellbeing and patient outcomes in heart failure: A meta-analysis. J Cardiovasc Nurs. 2017 Jul; 32(4): 372–382. Doi: https://doi.org/10.1097/JCN.0000000000000350
18. Kelley D, Kent E, Litzelman K, Mollica MA, Rowland JH. Dyadic associations between perceived social support and cancer patient and caregiver health: An Actor-Partner Interdependence modeling approach. Psychooncology. 2019. Jul; 28(7): 1453–1460. Doi: https://doi.org/10.1002/pon.5096
19. Reblin M, Clayton MF,Xu J, Hulett JM, Latimer S, Donaldson G, Ellington L. Caregiver, patient, and nurse visit communication patterns in cancer home hospice. Psychooncology. 2017. Dec; 26(12): 2285–2293. Doi: https://doi.org/10.1002/pon.4361
20. Santamaría NP, García LE, Sánchez B, Carrillo G. Percepción del cuidado de enfermería dado a los pacientes con cáncer hospitalizados. Rev. latinoam. bioet, 2016. Dic; 16(1):104-127. Doi: http://dx.doi.org/10.18359/rlbi.1443
21. Meunier-Beillard N, Ponthier N, Lepage C, Gagnaire A, Gheringuelli F, Bengrine L, et al. Identification of resources and skills developed by partners of patients with advanced colon cancer: a qualitative study. Support Care Cancer. 2018. Dec; 26(12):4121-4131. Doi: http://dx.doi.org/10.1007/s00520-018
2. Tiago de Oliveira W, Misue Matsuda L, Aparecida MC. Relationship between wellness and sociodemographic characteristics of caregivers of people with cancer. Invest. Educ. Enferm. 2016 Feb; 34(1): 128-136. Doi https://dx.doi.org/10.17533/udea.iee.v34n1a15
3. Ferreira NML, Dupas G, Costa DB, Sanchez KOL. Câncer e família: compreendendo os significados simbólicos. Ciênc Cuid Saúde. 2010 Sep;9(2):269-77. Doi: https://doi.org/10.4025/cienccuidsaude.v9i2.8749
4. Chaparro L. Cómo se constituye el “vínculo especial” de cuidado entre la persona con enfermedad crónica y el cuidador familiar. Aquichán. 2011 Abr; 11(1): 7-22. Doi: http://dx.doi.org/10.5294/aqui.2011.11.1.1
5. Lyons KS, Lee CS. The theory of dyadic illness management. J Fam Nurs. 2018 Feb; 24(1), 8–28. Doi: http://dx.doi.org/10.1177/1074840717745669
6. Strauss A, Corbin J. Bases de la investigación cualitativa. Técnicas y procedimientos para desarrollar la Teoría Fundamentada. Medellín: Universidad de Antioquia; 2002.
7. Morse JM. Asuntos críticos en los métodos de investigación cualitativa. Medellín: Universidad de Antioquia; 2003
8. Guba EG, Lincoln YS. Effective evaluation: Improving the usefulness of evaluation results through responsive and naturalistic approaches: Jossey-Bass; 1981.
9. Chaparro L, Sánchez B, Carrillo GM. Encuesta de caracterización del cuidado de la diada cuidador familiar - persona con enfermedad crónica. Rev. Cien. Cuidad. 2014 Sep; 11(2): 31-45. Doi: https://doi.org/10.22463/17949831.196
10. Chaparro L, Barrera-Ortiz L, Vargas-Rosero E, Carreño-Moreno SP. Mujeres cuidadoras familiares de personas con enfermedad crónica en Colombia. Rev. cienc. cuidad. 2016 Jun; 13(1): 72-86. Disponible: https://revistas.ufps.edu.co/index.php/cienciaycuidado/article/view/736
11. Carreño S, Chaparro L. Agrupaciones de cuidadores familiares en Colombia: perfil, habilidad de cuidado y sobrecarga. Pensam psicol. 2017; Ene15(1): 87-101. Disponible: https://revistas.javerianacali.edu.co/index.php/pensamientopsicologico/article/view/1393
12. Instituto Nacional de Cancerología –INC. Análisis de Situación del Cáncer en Colombia 2015. Bogotá D.C., Ministerio de Salud y Protección Social. 2017. Disponible: https://www.cancer.gov.co/Situacion_del_Cancer_en_Colombia_2015.pdf
13. Comin L T, Panka Marina, BV, Steffani JA, Bonamigo EL. Percepción de los pacientes oncológicos sobre la terminalidad de la vida. Rev. Bioét. 2017 Aug; 25(2): 392-401. Doi: https://doi.org/10.1590/1983-80422017252199.
14. Suess A, March JC, Prieto MA, Escudero MJ, Cabeza E, Pallicer A. El proceso asistencial de cáncer: necesidades y expectativas de los usuarios. Oncología (Barc.) [Internet]. 2006 Oct; 29(9): 13-23. http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S0378-48352006000900002&lng=es.
15. Douglas SL, Mazanec P, Lipson A, Leuchtag M. Distance caregiving a family member with cancer: A review of the literature on distance caregiving and recommendations for future research. World J Clin Oncol. 2016 Apr; 7(2): 214–219. Doi: https://doi.org/10.5306/wjco.v7.i2.214
16. Wittenberg-Lyles E, Debra PO, Demiris G, Rankin A, Shaunfield S, Kruse RL. Conveying empathy to hospice family caregivers: team responses to caregiver empathic communication. Patient Educ Couns. 2012 Oct; 89(1):31-7. Doi: http://dx.doi.org/10.1016/j.pec.2012.04.004
17. Bidwell JT, Lyons KS, Lee CS. Caregiver wellbeing and patient outcomes in heart failure: A meta-analysis. J Cardiovasc Nurs. 2017 Jul; 32(4): 372–382. Doi: https://doi.org/10.1097/JCN.0000000000000350
18. Kelley D, Kent E, Litzelman K, Mollica MA, Rowland JH. Dyadic associations between perceived social support and cancer patient and caregiver health: An Actor-Partner Interdependence modeling approach. Psychooncology. 2019. Jul; 28(7): 1453–1460. Doi: https://doi.org/10.1002/pon.5096
19. Reblin M, Clayton MF,Xu J, Hulett JM, Latimer S, Donaldson G, Ellington L. Caregiver, patient, and nurse visit communication patterns in cancer home hospice. Psychooncology. 2017. Dec; 26(12): 2285–2293. Doi: https://doi.org/10.1002/pon.4361
20. Santamaría NP, García LE, Sánchez B, Carrillo G. Percepción del cuidado de enfermería dado a los pacientes con cáncer hospitalizados. Rev. latinoam. bioet, 2016. Dic; 16(1):104-127. Doi: http://dx.doi.org/10.18359/rlbi.1443
21. Meunier-Beillard N, Ponthier N, Lepage C, Gagnaire A, Gheringuelli F, Bengrine L, et al. Identification of resources and skills developed by partners of patients with advanced colon cancer: a qualitative study. Support Care Cancer. 2018. Dec; 26(12):4121-4131. Doi: http://dx.doi.org/10.1007/s00520-018
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